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Our April 2011 Networker magazine features Individualised Funding and includes information from the Ministry of Health and articles by contracted Auckland IF hosts. There are also two families stories of their experience of IF and a Q&A section. Click here to view a pdf of our current Networker. The next edition of Networker magazine will be released early March 2012.
PFRC produces a bi-monthly E bulletin which contains information about upcoming events, seminars and workshops in the community as well as other useful notices involving disability issues. Click here to view our latest E bulletin dated 31 January 2012.
Trusts & Welfare Guardianship Seminars
'Planning for when we are no longer here' - Parent & Family Resource Centre is running these seminars over February/March:
North Auckland
Wednesday 29 February – 7-9pm
YES Disability Resource Centre, 3 William Laurie Place, Albany
South Auckland
Wednesday 7 March – 7-9pm
Nathan Homestead, 70 Hill Road, Manurewa
West Auckland
Wednesday 28 March – 7-9pm
Integrated Neurological Rehabilitation Foundation, 2 Claude Brookes Drive (off Edmonton Road), Henderson
Presenter: Nan Jensen, Honours Law Student
Cost: $20 per family – Presentation handouts and light supper provided
RSVP: 636-0351 or melissa@pfrc.org.nz
We have a maximum capacity of 20 people to attend each seminar so RSVP is essential.
Who Should Attend:
The parents of disabled people who are concerned with the wellbeing and future of their loved one over the long term.
Individualised Funding Seminars
A presentation by Karen Smith, Ministry of Health - hosted by Parent & Family Resource Centre
When: Thursday 1st March 7 – 9pm
Where: Nathan Homestead, 70 Hill Road, Manurewa
When: Tuesday 13th March 12.30 - 2.30pm (preschoolers welcome)
Where: Disability Resource Centre, 14 Erson Ave, Royal Oak
When: Tuesday 20th March 7 - 9pm
Where: YES Disability Resource Centre, 3 William Laurie Place, Albany
RSVP essential, please contact Melissa at PFRC on 09 636-0351 or melissa@pfrc.org.nz
Who Should Attend:
If you are a disabled person, parent or guardian of a disabled person, you might want more choice about how services will be delivered, when they will be delivered and who will provide your government funded support. Individualised funding helps you;
- employ the support staff you want in your life - people who understand your culture, priorities, preferences and lifestyle choices
- set your own timetable so support staff come and go as you want, so you can build stronger relationships and enjoy a better social life
- source 'respite' care that best benefits your family
- identify new sources of support
- take charge of who enters your life and reclaim your priorities
Childrens Autism Foundation workshops
The Childrens Autism Foundation is running a series of workshops over February including: Sexsmart for Teenagers, Understanding Autism and Skills Through Play. To view their latest E bulletin and for more details re these workshops please click here.
Citizens Advice Bureau
The Remuera branch of Citizens Advice Bureau runs Finance and Debt Management Clinics, Legal Clinics, has a Justice of the Peace available and Cantonese/Mandarin speaker available at certain times of the week. For further details please click here. Also, CAB have developed an info sheet regarding Wills, to view please click here.
IHC Call to Action
The IHC has published a new advocacy resource called Call to Action. The booklet aims to raise awareness and encourage much needed action for New Zealand children and young people who are disabled. Click here for more information on the Call to Action campaign http://www.ihc.org.nz/campaigns/election-2011/ IHC has consulted widely with families, professionals, community groups and with children and young people themselves about the issues and solutions identified in this Call to Action Resource. IHC encourages you to read this resource and take action. For further information or to order more resources please contact IHC on advocacy@ihc.org.nz or phone 04 472 2247.
Autism Spectrum Disorder Kiwisports Basketball
ASD Kids Charitable Trust is running basketball training at Breakers Gymnasium, Atlas Place, North Shore on Sundays from 12 - 2pm in Term 4, starting 30 October. Fun visually laid out ball skills with the aim to get moving to improve co-ordination, team skills, fitness and social play. Contact Mary Henderson at maryhenderson2@me.com to register. For further information visit www.asdkidstrust.com or click here. Note, session on North Shore is now full. Contact Mary and put your name on a waiting list for February. South Auckland still has places available. South Auckland group had their first adult attend last weekend - person came along with his carer from his community flat - this is suited to all persons on the ASD spectrum - it is essential to contact Mary first so they can ensure everyone is well catered to - for families in West Auckland let us know your interest level for 2012 - refer www.asdkidstrust.com contact page or notices re programmes.
Woodworking Workshop in Silverdale
Bruce Davey has been running a successful Woodworking workshop in Silverdale for the last year and accepts students with disabilities. Unfortunately the workshop space he occupies is now required back by the owner and Bruce would like to continue to operate this service from another suitable building. For more information about the workshop (including his contact details) and how you may be able to assist Bruce find new premises please click here.
Crafting A Future Workshop - Hawkes Bay - 17/18 March 2012
A weekend for families with a disabled family member who are seeking strategies for a better life. This workshop is specifically designed for families and is relevant to any person who is concerned with the well being and future of a person with a disability over the long term. Participants should be prepared to explore options different to those offered by the system, be willing to share their experiences and to take a lead among their peers. To download a copy of the brochure for the Hawkes Bay workshop click here (pdf).
Purpose
This workshop will explore:
The importance of planning in securing the future and changing the present for someone who has a disability.
Who is there now and who will be there in the future to provide security, companionship and love.
Who will ensure the persons interests are protected, their contributions recognised and their needs and choices honored.
Themes
Establishing a Vision of a good life for your family member
Building a larger network of enduring relationships to ensure ongoing support, community involvement & more opportunities
Thinking about roles.
Wills; Trusts; Estates; Benefits.
Overview
Day One:
Introducing the good life - attainable by everyone
Focusing on strengths and gifts to help us build the vision
Challenges of achieving the good life and the role of family governance
Valued and meaningful roles as an important cornerstone in crafting a good future
Introducing Family Trusts, Property Managers and Welfare Guardians.
Day Two
Creating a circle of support - a network of engaged, caring and skilled people who can build enduring relationships to help you towards your future
Where to from here? What is next in working towards your vision of the future.
Cost
The cost of the course is $30 per person. Price includes GST and covers tuition, all materials and morning/afternoon tea and lunch.
Venue
Hawkes Bay (Napier) 17th - 18th March 2012 - 9am-4.30pm each day
Fairhaven
Tamatea High School
Taradale Road Entrance
Tamatea, Napier
Course Leaders
This programme will be led by Lorna Sullivan. Lorna Sullivan is the Chief Executive for Standards Plus, a small, national agency working to promote innovation and change in delivery of services and development of community for disabled people, older people and people with experience of mental illness and their families. Lorna has worked extensively within the disability sector in New Zealand. Her particular areas of interest include working with people with a disability and family members to build services and supports that are genuinely relevant to their needs and their individual pursuit for personally meaningful futures. She uses what she learns to support people with a disability, their families, advocacy groups, service providers and governments interested in working for positive change.
Tony Banks- Solicitor (Wills, trust and estate planning) & Nan Jensen (Honours Law Student). Tony has been involved in the disability sector at the governance level since 1989 and periodically provides legal information to support families who have a member with a disability. He lives in Tamahere with his wife Maggie. Two daughters and two grandsons live close by in Hamilton, with a son and his partner living in Upper Hutt. He is a self employed lawyer and supports Maggie with Birthspirit – an independent midwifery education provider.
Registration
Registrations for these events are now open. To register please click here or ring Melissa at PFRC on 636-0351 or melissa@pfrc.org.nz
Please note that this event is being administrated by the Parent and Family Resource Centre not ImagineBetter. If you have any questions about registering for this event please contact Melissa Linton at PFRC.
These events are hosted by ImagineBetter and the Parent and Family Resource Centre with the generous sponsorship from Te Pou.
Waitangi Day Free Train Rides (for special needs children & their families)
The Manukau Live Steamers Club is holding thier annual free train rides for special needs children and their families on Monday 6th February 2012 between 11am and 4pm at Centre Park, 141 Robertson Road, Mangere. There will be a Mad Butcher sausage sizzle for lunch. All children MUST be accompanied by a caregiver please. For more infomration please click here or ring Lynne Giles 535 8577.
Transition Expo 2012
The Parent & Family Resource Centre will be running our annual Transition Expo on Tuesday 15 May 2012 from 9am till 3pm, in association with the Ministry of Social Development. The venue will be the AMI Netball Centre, 7 Allison Ferguson Drive, St. Johns, Auckland. More details will be available soon.
Office Space Available at Parent & Family Resource Centre
The Parent & Family Resource Centre has an office for rent at our premises 92A Princes Street, Onehunga. We are a not-for-profit Disability Information Advisory Service, contracted to operate throughout Auckland - north to Warkworth and south to Waiuku. Currently, some of our tenants include organisations working in the health/disability sector but this is not a requirement. The available office is upstairs (sorry, no lift) and would comfortably fit 2 workstations. Some utilities here at PFRC are shared such as kitchen/toilet facilities, internet access, phone system, photocopier, board room and mail delivery/postal service. We have ample free street parking and are located within walking distance to Onehunga Mall. The Onehunga train station is close by. Please contact Lisa 636 0351 if you would like further information.
The Big Event December 9th & 10th March 2012 ASB Events Centre, Greenlane, Auckland
A National Disability Expo brought to you by the Auckland Disability Providers Network. For more information click here
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